Intractable Epilepsy

David Lisgo's fundraising page

David Lisgo

David Lisgo

My Story

Intractable Epilepsy help children and young adults with intractable forms of epilepsy. There is an estimated 26,000 people in the UK, who do not respond to routine treatments that help control seizures. Some sufferers have hundreds of devastating seizures every day, which has a huge impact on their quality of life. Living with uncontrolled seizures also increases the risk of sudden unexplained death in epilpsy. (SUDEP) There are around 600 SUDEP deaths in the UK each year. Many of these intractable epilepsy sufferers have sourced private treatment to improve their quality of life and reduce daily seizure, like six year old Olive who was recently helped with his £2,195 per month prescription costs. Ground Breaking Charity steps in to support six year old child

Intractable Epilepsy charity fund prescription costs of medicinal cannabis for those with intractable epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. Medicinal Cannabis has been legal to prescribe in the UK since 2018, but access on the NHS remains blocked. So the families have to cope with the immense strain of fundraising around £2,000 every month to access it privatly and deal with the daily care of their sick children, imagine if this was your child. Please help us to support and help these families. Your donations will support the families in maintaining a continued safe access to their life saving medicine.

Intractable Epilepsy

Raising for:

Intractable Epilepsy
52%

Funded

  • Target
    £300
  • Raised so far
    £158
  • Number of donors
    6

My Story

Intractable Epilepsy help children and young adults with intractable forms of epilepsy. There is an estimated 26,000 people in the UK, who do not respond to routine treatments that help control seizures. Some sufferers have hundreds of devastating seizures every day, which has a huge impact on their quality of life. Living with uncontrolled seizures also increases the risk of sudden unexplained death in epilpsy. (SUDEP) There are around 600 SUDEP deaths in the UK each year. Many of these intractable epilepsy sufferers have sourced private treatment to improve their quality of life and reduce daily seizure, like six year old Olive who was recently helped with his £2,195 per month prescription costs. Ground Breaking Charity steps in to support six year old child

Intractable Epilepsy charity fund prescription costs of medicinal cannabis for those with intractable epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. Medicinal Cannabis has been legal to prescribe in the UK since 2018, but access on the NHS remains blocked. So the families have to cope with the immense strain of fundraising around £2,000 every month to access it privatly and deal with the daily care of their sick children, imagine if this was your child. Please help us to support and help these families. Your donations will support the families in maintaining a continued safe access to their life saving medicine.