My brother has M.E. (myalgic encephalomyelitis). You walk to do the dishes and feel tiredness and pain in your legs like you've just sprint-finished a marathon. Rest doesn't help; it can take weeks to recover from any physical exertion. You become housebound, can not socialize or work. The task of cooking and cleaning is often just too large. Your memory and concentration are in tatters and you need at least 14 hours sleep a day. Causes are unclear, it's impossible to explain and therefore you must also bear the related stigma. Why you? When will it end? This is what life feels like for my brother, Edward every day.
250,000 people have ME in the UK. A quarter of these are housebound from the severity of their symptoms and suffer for many years. The primary aim of ME Research UK is to fund biomedical research into ME/CFS – to find its cause, develop effective treatments and ultimately discover a cure.
I will be getting my trainers on and running a half marathon, the Great North Run. Please sponsor me to raise money to raise hope for people like my brother Ed. Any contribution welcome. Thank you so much.