Jenni’s ME Association fundraiser running the Great North Run
Jenni F
My Story
Hi
On September 10th I will be running a half Marathon completing the Great North Run.
I will be running to raise awareness and hopefully raise vital funds for the ME Association in support of my 14 year old daughter who became disabled with ME/CFS as a result of having glandular fever when she was 12.
The photos above show before she got ill and throughout different stages of her illness.
Since she was diagnosed we've found out there are thousands of children and teenagers, not to mention hundreds of thousands of adults in the UK who also suffer with this neurological disease.
ME/CFS is a complex, chronic medical condition affecting multiple body systems. It causes extreme fatigue which is not relieved by sleep, and any physical, emotional or cognitive exertion can cause Post Exertional Malaise which can last for hours, days or even weeks. Unfortunately, it is widely misunderstood by the medical profession and there is very little help offered and no cure. It affects everyone differently and impacts on various aspects of daily living, family life, social life, emotional well-being, work and education.
Before falling ill, my daughter used to dance 3 times a week, walked or cycled 5 miles to school every day and even walked over 20 miles round the Preston Guild Wheel in a day raising money for charity. After catching Glandular Fever she didn't recover and was diagnosed with ME/CFS a few months later. Now her disability is so debilitating that she no longer is able to go to school, relies on a wheelchair and is no longer able to dance. I've had to reduce my work hours and go part time to be able to cope with her care. Washing her hair and basic activities like brushing her teeth and hair have become such an energy drain for her most days she can't manage these on her own. She's having to learn how to manage what little energy she has which leaves nothing left for any normal social things 14 year olds do.
The ME Association supports people through all stages of their illness and through research, hope to develop an effective treatment and one day even a cure.
Anybody can get ME/CFS but with only a 5% chance of a full recovery, I'm determined to raise money for this worthwhile cause to help improve the lives of hundreds of thousands of people and to hopefully help our family get back our girl's sparkle.
Thank you in advance for any donations however big or small, every penny counts.
Jenni x
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Target
£1,500
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Raised so far
£898
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Number of donors
41
My Story
Hi
On September 10th I will be running a half Marathon completing the Great North Run.
I will be running to raise awareness and hopefully raise vital funds for the ME Association in support of my 14 year old daughter who became disabled with ME/CFS as a result of having glandular fever when she was 12.
The photos above show before she got ill and throughout different stages of her illness.
Since she was diagnosed we've found out there are thousands of children and teenagers, not to mention hundreds of thousands of adults in the UK who also suffer with this neurological disease.
ME/CFS is a complex, chronic medical condition affecting multiple body systems. It causes extreme fatigue which is not relieved by sleep, and any physical, emotional or cognitive exertion can cause Post Exertional Malaise which can last for hours, days or even weeks. Unfortunately, it is widely misunderstood by the medical profession and there is very little help offered and no cure. It affects everyone differently and impacts on various aspects of daily living, family life, social life, emotional well-being, work and education.
Before falling ill, my daughter used to dance 3 times a week, walked or cycled 5 miles to school every day and even walked over 20 miles round the Preston Guild Wheel in a day raising money for charity. After catching Glandular Fever she didn't recover and was diagnosed with ME/CFS a few months later. Now her disability is so debilitating that she no longer is able to go to school, relies on a wheelchair and is no longer able to dance. I've had to reduce my work hours and go part time to be able to cope with her care. Washing her hair and basic activities like brushing her teeth and hair have become such an energy drain for her most days she can't manage these on her own. She's having to learn how to manage what little energy she has which leaves nothing left for any normal social things 14 year olds do.
The ME Association supports people through all stages of their illness and through research, hope to develop an effective treatment and one day even a cure.
Anybody can get ME/CFS but with only a 5% chance of a full recovery, I'm determined to raise money for this worthwhile cause to help improve the lives of hundreds of thousands of people and to hopefully help our family get back our girl's sparkle.
Thank you in advance for any donations however big or small, every penny counts.
Jenni x
